• 文章类型: Journal Article
    本文研究了在拉脱维亚背景下为有复杂健康需求的亲戚提供长期护理的家庭护理人员的经验。对7名护理人员进行了半结构化访谈,他们在痴呆症病例中提供护理,抑郁症,精神分裂症,阿片类药物的使用,唐氏综合征和轻度认知障碍。访谈笔录的主题分析揭示了共同的主题,如最初的经历,当遇到一个家庭成员的障碍和随后的反应,以及寻求支持和资源。差异主要集中在形式方面和儿童护理经验的差异。看护者报告的风险因素,如内疚,缺乏家人和朋友的支持,财政困难,缺乏专业护理,忽视了护理人员自身的需求。对个人资源的认识,值和限制,应对个人污名和改善整体生活质量被确定为保护因素.研究结果强调了社会和精神卫生服务可以实施的几项预防措施,以减轻护理对护理人员生活的不利影响。
    The article examines the experiences of family caregivers engaged in the provision of long-term care for their relatives with complex health needs within the Latvian context. Semi-structured interviews were conducted with seven caregivers who provide care in cases of dementia, depression, schizophrenia, opioid use, Down syndrome and mild cognitive impairment. A thematic analysis of interview transcripts revealed common themes, such as the initial experiences when encountering a family member\'s disorder and the subsequent reactions, as well as the quest for support and resources. Variations mainly centered around differences in formal aspects and childhood experiences of care. Caregivers reported risk factors such as guilt, lack of support from family and friends, financial difficulties, deficiency of professional care and ignoring the caregiver\'s own needs. Awareness of personal resources, values and limits, coping with personal stigma and improved overall quality of life were identified as protective factors. The findings underscore several preventive measures that social and mental health services could implement to mitigate the adverse effects of caregiving on caregivers\' lives.
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  • 文章类型: Journal Article
    背景:饮食失调的危险因素是多方面和复杂的,因此,阐明执行职能的作用至关重要,包括冲动性和元认知,以及饮食行为严重程度的应对策略。这项研究的目的有三个:(1)分析冲动的性别差异,元认知,应对策略,情绪调节,和进食障碍;(2)检验研究变量之间的相关性;(3)检验应对和情绪调节策略在元认知关系中的中介作用,冲动,和饮食失调。
    方法:共有1076名参与者(Mage=21.78,SD=5.10;77.7%的女性)完成了一组问卷。进行了两次中介分析,以测试应对策略的中介作用,包括情绪调节,在执行功能之间的关系中(即,冲动和元认知)和饮食失调。
    结果:女性表现出更高的应对策略,特别是情感表达,一厢情愿的想法,社会支持,而男性表现出更大的社会退缩。中介分析表明,冲动,元认知,和饮食失调,其关系部分由应对策略介导,主要由情绪调节。
    结论:基于应对策略和情绪调节的干预措施可能是应对年轻人饮食失调的可行且有效的选择。
    BACKGROUND: Risk factors for eating disorders are multifaceted and complex, so it is crucial to elucidate the role of executive functions, including impulsivity and metacognition, and coping strategies in the severity of eating behaviors. The study aims were threefold: (1) to analyze gender differences in impulsivity, metacognition, coping strategies, emotion regulation, and eating disorders; (2) to examine the correlation between the study variables; and (3) to test the mediating role of coping and emotion-regulation strategies in the relationship between metacognition, impulsivity, and eating disorders.
    METHODS: A total of 1076 participants (Mage = 21.78, SD = 5.10; 77.7% women) completed a set of questionnaires. Two mediation analyses were conducted to test the mediating role of coping strategies, including emotion regulation, in the relationship between executive functions (i.e., impulsivity and metacognition) and eating disorders.
    RESULTS: Women displayed higher coping strategies, specifically emotional expression, wishful thinking, and social support, whereas men presented greater social withdrawal. Mediational analyses showed a significant association between impulsivity, metacognition, and eating disorders, whose relationship was partially mediated by coping strategies and mainly by emotion regulation.
    CONCLUSIONS: Interventions based on coping strategies and emotion regulation could be a feasible and effective option to deal with eating disorders among the young population.
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  • 文章类型: Journal Article
    在发展中国家,关于灾害暴露与青少年心理健康问题之间的联系存在知识差距。本研究调查了斯里兰卡的情况,以调查(a)2004年海啸灾难对青少年的直接和长期心理健康影响,以及(b)斯里兰卡盛行的独特文化和家庭习俗的潜在调节作用。这项研究使用了160名青少年(12-19岁)及其母亲的随机样本,这些青少年在斯里兰卡南部的一个村庄生活时遭受了海啸灾难,并在灾难发生后立即(2005年)和三年后(2008年)提供了前瞻性数据。一种跨文化验证的工具评估了青少年-母亲的海啸暴露,压力大的损失,家庭文化仪式和家庭主义,青少年心理健康。结构方程模型分析表明,海啸引起的压力经历的暴露和感知与青少年早期和后期的心理健康问题有关。此外,这项研究发现,独特的文化习俗和家族主义缓和了青少年海啸暴露之间的联系,紧张的经历,创伤后应激障碍和抑郁症状的水平。这项研究的结果可用于制定预防和干预计划,这些计划在背景和文化上都是有效的,并且在经验上得到了支持。这将是更有效的创伤暴露在发展中国家的青少年。
    There is a knowledge gap regarding the link between disaster exposure and adolescent mental health problems in developing countries. This study examines the case of Sri Lanka to investigate (a) the immediate and long-term mental health impact of the 2004 tsunami disaster on adolescents and (b) the potential moderating effects of unique cultural and family practices that prevail in Sri Lanka. This study used a random sample of 160 adolescents (ages 12-19) and their mothers who were exposed to the tsunami disaster while living in a southern Sri Lankan village and provided prospective data immediately after the disaster (2005) and three years later (2008). A cross-culturally validated instrument assessed adolescent-mother dyads\' tsunami exposure, stressful loss, family cultural rituals and familism, and adolescent mental health. Structural equation modeling analysis showed that exposure and perceptions of tsunami-induced stressful experiences were associated with early and later mental health problems in adolescents. In addition, this study found that unique cultural practices and familism moderated the link between adolescent tsunami exposure, stressful experiences, and levels of PTSD and depressive symptoms. The findings of this study could be utilized to develop prevention and intervention programs that are contextually and culturally valid and empirically supported, which would be more effective for trauma-exposed adolescents in developing countries.
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  • 文章类型: Journal Article
    对与热有关的风险的认识不断提高,以及加强各级备灾战略的相关必要性,促使人们越来越重视传播有关热脆弱性的知识。这些努力旨在为不同的利益相关者提供实用的热量规划和预测工具。这些交流计划的成功取决于对风险的细微差别以及将热量作为健康风险处理的优先事项的理解。本文深入研究了无住房人口的风险认知和应对策略。被公认为极端高温下服务最不足和最脆弱的群体之一,无住房的人面临长期暴露,精神和身体健康问题的频率增加,极端高温事件期间的应对资源有限。尽管人们普遍承认他们的脆弱性,很少有人关注在这个人口统计学中关于过热的健康行为。我们使用计划行为理论(TPB)开发了一种调查工具来弥合这一差距。我们从哥伦比亚的无住房人口中收集了定量调查数据,南卡罗来纳州,美国的一个地区,经历了极端的高温事件,有相当大的无住房人口。使用一系列分层多元回归模型,我们的研究结果表明,TPB变量预测了避免高温的意图,同时考虑了无住房个体常见的其他应对策略。这些发现为公共卫生研究人员提供了有价值的见解,从业者,社区官员与无住房人口直接互动,告知这个服务不足的群体如何管理过度的热暴露。
    The escalating awareness of heat-related risks and the associated imperative to enhance preparedness strategies at various levels has spurred a growing emphasis on disseminating knowledge about heat vulnerability. These efforts aim to equip diverse stakeholders with practical heat planning and forecasting tools. The success of these communication initiatives hinges on understanding the nuanced perceptions of risk and the priority assigned to addressing heat as a health risk. This paper delves explicitly into the unhoused population\'s risk perceptions and coping strategies. Acknowledged as one of the most underserved and vulnerable groups to extreme heat, unhoused individuals face prolonged exposure, a heightened frequency of mental and physical health issues, and limited coping resources during extreme heat events. Despite widespread acknowledgment of their vulnerability, little attention has been directed towards researching health behavior within this demographic about excessive heat. We developed a survey instrument using the theory of planned behavior (TPB) to bridge this gap. We collected quantitative survey data from unhoused populations in Columbia, South Carolina, an area of the United States that experiences extreme heat events and has a sizeable unhoused population. Using a series of hierarchical multiple regression models, our findings indicate that TPB variables predict the intention to avoid the heat while considering additional coping strategies common among unhoused individuals. These findings offer valuable insights for public health researchers, practitioners, and community officials engaged in direct interactions with unhoused populations, informing how this underserved group manages excessive heat exposure.
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  • 文章类型: Journal Article
    背景:患有神经发育障碍(NDD)的儿童的父母比通常发育中的儿童的父母经历更多的压力。在与专家和父母共同创造的过程中,开发了一种基于积极心理学和正念原理的低门槛应用程序。此应用程序,叫做“Adappt,“旨在提高NDD儿童的父母和照顾者的适应能力,并支持他们的心理健康。该协议描述了Adappt有效性的评估研究,其核心工作机制和用户体验。
    方法:一项务实的国际多中心随机对照试验将比较Adappt与(延迟)等待名单对照条件的有效性。至少212名被诊断患有或怀疑患有NDD的18岁以下儿童的父母或主要看护人将被随机分配到干预或等待控制条件。如果参与者有严重的焦虑或抑郁水平或正在治疗心理健康问题,则将被排除在外。措施将在基线在线收集,干预后(基线后1个月),基线后4个月和7个月。主要结果是在4个月的随访中,通过通用适应能力量表(GSAAS;(FrontPsychol14:985408,2023))测量的通用适应能力的改善。次要结果是心理健康,(父母)痛苦,和客户对“Adappt”的满意度。
    结论:这项研究的结果将有助于了解多个国家NDD儿童父母的低阈值应用的有效性。如果发现该应用程序可有效改善心理健康,将提出在医疗保健中实施的建议。
    背景:这项研究于2024年2月8日在clinicaltrials.gov(NCT06248762)和开放科学框架(https://osf.io/5znqv)上注册。
    BACKGROUND: Parents of children with a neurodevelopmental disorder (NDD) experience more stress than parents of typically developing children. In a cocreation process with experts and parents, a low-threshold application that uses exercises based on the principles of positive psychology and mindfulness was developed. This application, called \"Adappt,\" aims at enhancing the ability to adapt of the parents and caregivers of children with NDDs and at supporting their mental health. This protocol describes the evaluation study of the effectiveness of Adappt, its core working mechanisms and user experiences.
    METHODS: A pragmatic international multicenter randomized controlled trial will compare the effectiveness of Adappt with a (delayed) waitlist control condition. At least 212 parents or primary caregivers of children younger than 18 years diagnosed with or suspected of a NDD will be randomly assigned to the intervention or waitlist control condition. Participants are excluded if they have severe anxiety or depression levels or are in treatment for mental health issues. Measures will be collected online at baseline, post-intervention (1 month after baseline), and 4 and 7 months after baseline. The primary outcome is the improvement in generic sense of ability to adapt as measured with the Generic Sense of Ability to Adapt Scale (GSAAS; (Front Psychol 14:985408, 2023)) at 4-month follow-up. Secondary outcomes are mental well-being, (parental) distress, and client satisfaction with \"Adappt.\"
    CONCLUSIONS: Results of this study will contribute to knowledge on the effectiveness of a low-threshold application for parents of children with a NDD in multiple countries. If the application is found to be effective in improving mental health, recommendations will be made for implementation in health care.
    BACKGROUND: This study is registered on clinicaltrials.gov (NCT06248762) on February 8, 2024, and the Open Science Framework ( https://osf.io/5znqv ).
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  • 文章类型: Journal Article
    背景:紧急医疗服务提供者经常因其工作环境而面临各种压力源。这些压力源可能对个人的身心健康产生不利影响。这项研究的目的是探索紧急医疗服务提供者的压力管理策略。
    方法:这项研究是在2023年使用定性方法和内容分析方法进行的。使用有目的的抽样方法,包括来自哈马丹市的16家急诊医疗系统提供商。半结构化面试,持续时间为45-60分钟,进行了数据收集。使用Graneheim和Lundman的常规内容分析方法对数据进行了分析。
    结果:对访谈数据的分析揭示了三个主题:为最坏的条件做好准备,基于支持性伙伴关系的援助,争取平衡。这三个主题中的六个类别是心理准备,风险管理,应急响应方面的合作,支持性沟通,适应性行为,和适应不良的反应。
    结论:这项研究的结果揭示了急诊医疗服务提供者采用的各种压力管理策略。了解和实施有效的压力管理策略不仅可以增强急诊医疗服务提供者的福祉,还可以提高患者护理质量。进一步的研究和行动对于促进这些专业人员的韧性和心理健康至关重要,确保他们的整体幸福感和工作满意度。
    BACKGROUND: Emergency medical service providers are frequently exposed to a variety of stressors as a result of their work environment. These stressors can have detrimental effects on both the physical and mental well-being of individuals. This study was conducted with the aim of exploring stress management strategies in emergency medical service providers.
    METHODS: This study was conducted in 2023 using a qualitative approach and content analysis method. A purposive sampling method was used to include 16 emergency medical system providers from Hamadan city. Semi-structured interviews, with a duration of 45-60 min, were conducted for data collection. The Data were analyzed using Graneheim and Lundman\'s conventional content analysis approach.
    RESULTS: The analysis of the interview data revealed three themes: readiness for the worst conditions, assistance based on supportive partnerships, and striving for balance. The six categories within these three themes were mental preparation, risk management, collaborations in emergency response, supportive communication, adaptive behaviors, and maladaptive responses.
    CONCLUSIONS: The results of this study shed light on the various stress management strategies employed by emergency medical service providers. Understanding and implementing effective stress management strategies can not only enhance the well-being of emergency medical service providers but also improve the quality of patient care. Further research and action are essential to promote the resilience and mental health of these professionals, ensuring their overall well-being and job satisfaction.
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  • 文章类型: Journal Article
    阴茎癌是一种罕见的癌症,患者不仅需要应对癌症诊断的焦虑,还要管理治疗对他们自尊的影响,身体形象,和亲密关系。许多人感到尴尬,很难与家人和朋友交谈。由于这个原因,排尿的变化和治疗的其他身体影响,许多人也会退出社交活动。患者需要社会心理支持,需要做更多的工作来解决这种未满足的需求。临床中的整体和多学科方法,有了咨询,可以帮助患者适应新情况。
    Penile cancer is a rare cancer, where patients not only need to deal with the anxiety around a cancer diagnosis, but also manage the consequences of treatment on their self-esteem, body image, and intimate relationships. Many find it embarrassing and difficult to talk to family and friends. Due to this, changes in urination and other physical effects of treatment, many will withdraw from social activities too. Patients need psychosocial support and more needs to be done to address this unmet need. Holistic and multidisciplinary approaches in clinic, with access to counseling, may help patients adjust to their new situation.
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  • 文章类型: Journal Article
    背景:非运动症状(NMS)是帕金森病(PD)患者经常经历的症状,通常被认为是他们最麻烦的症状。然而,在临床管理欠佳的情况下,我们仍然对这些问题知之甚少.这些未满足的需求是PD中与健康相关的生活质量(QoL)的重要决定因素。
    目的:本研究的目的是使用参与式行动方法实时了解与PD的NMS一起生活的经验。
    方法:使用photovoice方法,有14名PD的人拍摄了照片,以记录他们与PDNMS一起生活的经历。他们撰写了相应的书面叙述,以捕捉NMS对其日常活动和QoL的影响。总的来说,152张照片和相应的叙述进行了分析,使用主题分析与归纳法。
    结果:确定了四个相互关联的主题。情绪幸福感和自我意识包含了适应与PD生活的过程。从事有价值的活动,采取积极的心态和利用应对策略被认为可以增强信心和自尊。社会支持和社会意识强调了支持关系和社交对帮助参与和避免孤立的重要性。社会参与的障碍包括NMS的不可预测性和不可见的NMS被忽视或误解。
    结论:研究结果表明,PD的非运动方面对情绪,职业和社会层面。这些需求可以通过以人为本和全面的护理方法来解决。
    这项研究采用了参与式研究方法,允许参与者选择对他们重要的主题以及如何展示他们的结果。此外,与PD的人一起举行了一个小组研讨会,他们的家庭成员和医疗保健专业人员指导主题发展。
    BACKGROUND: Nonmotor symptoms (NMSs) are frequently experienced by people with Parkinson\'s disease (PD) and are often perceived as their most bothersome symptoms. However, these remain poorly understood with suboptimal clinical management. These unmet needs are an important determinant of health-related quality of life (QoL) in PD.
    OBJECTIVE: The aim of this study was to gain insights into the experience of living with the NMS of PD in real-time using participatory action methodology.
    METHODS: Using the photovoice method, 14 people with PD took photographs to document their experiences of living with the NMS of PD. They composed corresponding written narratives to capture the impact of NMS on their daily activities and QoL. In total, 152 photographs and corresponding narratives were analysed using thematic analysis with an inductive approach.
    RESULTS: Four interrelated themes were identified. Emotional well-being and sense of self encompassed a process of adjustment to living with PD. Engaging in valued activities, adopting a positive mindset and utilising coping strategies were thought to enhance confidence and self-esteem. Social support and societal awareness highlighted the importance of supportive relationships and socialising to aid participation and avoid isolation. Barriers to social engagement included the unpredictability of NMS and nonvisible NMS being neglected or misunderstood.
    CONCLUSIONS: Findings demonstrated the far-reaching impact of nonmotor aspects of PD on emotional, occupational and social dimensions. These needs could be addressed through person-centred and comprehensive approaches to care.
    UNASSIGNED: This study utilised a participatory research approach allowing participants to choose the subjects that mattered to them and how to present their results. Additionally, a group workshop was held with people with PD, their family members and healthcare professionals to guide theme development.
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  • 文章类型: Journal Article
    肌萎缩侧索硬化症(PALS)患者如何处理其诊断并进行临终决策?他们对有关维持生命治疗和临终护理的咨询有哪些信息或支持需求?哪些相关条件和影响与这些需求有关,以及它们如何与死亡或生存的愿望联系在一起?我们于2019年3月至2021年4月在德国对13名ALS患者进行了定性访谈研究。数据收集和分析遵循了基于理论的方法,揭示了应对之间的密切关系,信息需求和决策准备。我们确定了应对策略\“避免考虑生命终结\”及其对应策略,\'提前计划做好充分准备,并将后者区分为“退出生命并采取预防措施以防止延长生命”和“寻找生命的新意义并为维持生命的治疗做准备”的模式。这些方法是基于个人的感知,态度和动机,可以积极/消极地加强医疗保健专业人员(HCP),家庭和其他人际网络,但也有疾病进展和对医疗保健服务的反应。有关信息和咨询的需求类型和程度因应对策略而异。这些策略可能会随着时间的推移而变化,导致不同的支持需求。我们的研究结果表明,需要深入了解PALS的应对过程,以了解他们关于维持生命治疗的决策。医疗保健专业人员应该对医疗方面以外的疾病经历保持敏感,并促进作为传记过程的应对,以更好地支持ALS患者。
    How do people with amyotrophic lateral sclerosis (PALS) deal with their diagnosis and engage in end-of-life decision-making? What informational or supportive needs do they have for counselling about life-sustaining treatment and end-of-life care? Which correlating conditions and influences relate to these needs and how do they connect to the wish to die or wish to live? We conducted a qualitative interview study with 13 people with ALS in Germany from March 2019 to April 2021. Data collection and analysis followed a grounded theory-based approach and revealed close relationships between coping, informational needs and the preparedness for decision-making. We identified the coping strategies \'avoid thinking about end-of-life\' and its counterpart, \'planning ahead to be well-prepared,\' and differentiated the latter into the patterns \'withdrawing from life and taking precautions against life-prolongation\' and \'searching for a new meaning in life and preparing for life-sustaining treatment\'. The approaches are based on individual perceptions, attitudes and motives and can be positively/negatively reinforced by healthcare professionals (HCP), family and other interpersonal networks, but also by disease progression and in reaction to health care services. Type and degree of needs concerning information and counselling differed according to coping strategies. These strategies may vary over time, resulting in different support needs. Our findings signify that deep insight is needed into PALS\' coping processes to understand their decision-making about life-sustaining treatment. Healthcare professionals should be sensitive to illness experiences beyond medical aspects and foster coping as a biographical process to better support people with ALS.
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  • 文章类型: Systematic Review
    本系统综述旨在(1)评估亚洲公众对自杀的媒体描述与随后的模仿自杀或企图之间的关联,(2)了解与模仿自杀相关的因素,以及(3)确定媒体报道自杀的积极影响(例如增加寻求帮助,应对)。
    对来自8个电子数据库(即PsycINFO,MEDLINE,Embase,CINAHL,WebofScience,Ariti,中国国家知识基础设施和OpenGrey)于2000年1月至2023年5月进行。包括观察性研究,并通过叙事综合分析数据。该方案在PROSPERO(CRD42021281535)注册。
    在综述中包含的32项研究(证据综合n=29)中,有高质量的证据表明,在媒体报道自杀后,模仿自杀和自杀未遂增加,无论哪个国家,名人身份,研究设计,媒体类型,自杀模式或随访期。雌性,较年轻的年龄组和与公布的自杀事件中死者具有相似特征的年龄组(年龄,性别)更容易受到负面影响。在公众中,以相同的方法报告死者的死亡方式增加了自杀。
    媒体对自杀的描述似乎对亚洲人口水平的模仿自杀产生了负面影响。因此,除了更严格的媒体控制,医疗保健系统,专业医疗机构和社区外展服务机构应共同努力,促进有心理困扰的人的早期求助。
    UNASSIGNED: This systematic review is aimed at (1) evaluating the association between media portrayals of suicides and subsequent copycat suicides or attempts among the general public in Asia, (2) understanding the factors associated with copycat suicides and (3) determining the positive impacts of the media reporting of suicides (e.g. increased help-seeking, coping).
    UNASSIGNED: A systematic review and narrative synthesis of English and Chinese articles from 8 electronic databases (i.e. PsycINFO, MEDLINE, Embase, CINAHL, Web of Science, Ariti, China National Knowledge Infrastructure and OpenGrey) from January 2000 to May 2023 was conducted. Observational studies were included, and the data were analysed through narrative synthesis. The protocol was registered with PROSPERO (CRD42021281535).
    UNASSIGNED: Among the 32 studies included (n=29 for evidence synthesis) in the review, there is good-quality evidence to show that copycat suicides and suicide attempts increase after media reports of a suicide, regardless of country, celebrity status, study design, type of media, mode of suicide or follow-up period. Females, younger age groups and those sharing similar characteristics as the deceased in publicised suicides (age, gender) were more susceptible to negative impact. Reporting of the mode of death of the deceased increased suicides by the same method among the public.
    UNASSIGNED: Media portrayals of suicide appear to have a negative impact on copycat suicides at the population level in Asia. Thus, in addition to tighter media control, healthcare systems, professional medical bodies and community outreach services should work collaboratively to promote early help-seeking in those with psychological distress.
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